Home Glossary Index

Supplemental Websites for this Chapter

Information to Supplement this Chapter from the Authors

Other Websites Pertinent to this Chapter

Websites from this Chapter in the Text

Websites Referred to in the Text of this Chapter

Chapter References for this Chapter that Are Online

Onsite Information to Supplement the Text

There are none for this chapter.

 

Top of the Page

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Offsite Websites That Are Pertinent to This Chapter

From other chapter pages

Accessibility to the Web (Designing for)

Making Your Web site Senior Friendly. This site provides a description of many research-based features that should be implemented on a Web site to make it easier for those whose sight is not what it may have been at age 55 to use the site.
http://www.nlm.nih.gov/pubs/staffpubs/od/ocpl/agingchecklist.html

Web Accessibility Evaluation Tools: Overview (2006). From the World Wide Web Consortium (W3). Reliable information from the best source.
http://www.w3.org/WAI/ER/tools/

HiSoftware® Cynthia Says™ Portal. This is a joint Education and Outreach project of HiSoftware, ICDRI, and the Internet Society Disability and Special Needs Chapter. Checks a page for violations of accessibility.
http://www.cynthiasays.com/

Berliss, J., Kraus, L. & Stoddard S. (1996). Design of Accessible Web Pages. One of the first guidelines to address this issue, it still is very helpful.
http://www.infouse.com/disabilitydata/accessibility/guidelines96.php

Introduction to Web Accessibility. A white paper that describes how people with disabilities use the Internet, and how their disability affects their use of the Internet. Visual impairments, hearing impairments, mobility impairments, cognitive impairments and seizure disorders are explored. This is an excellent site for an overview of this topic.
http://www.webaim.org/intro/

Checking how your page will render in the text only browser, Lynx.
http://www.delorie.com/web/lynxview.html

Check links in your page periodically. This checker gives you line numbers to help you locate the problem link.
http://validator.w3.org/checklink

Consumer Empowerment

Cannoy, Sherrie Drye (2008). Consumer Empowerment in Healthcare Information Exchange: an Investigation Using the Grounded Theory Approach. Interestingly, the author's name appears often in connection with consumer empowerment. Abstract at http://libres.uncg.edu/ir/listing.aspx?id=390. Dissertation at
http://libres.uncg.edu/ir/uncg/f/umi-uncg-1670.pdf

Top of the Page

 

Consumer Informatics

Agency for Healthcare Research and Quality. Consumer Health Informatics and Patient Decision Making.
http://www.ahrq.gov/research/rtisumm.htm

Alpay, L., J. Verhoef, et al. (2009). "Current Challenge in Consumer Health Informatics: Bridging the Gap between Access to Information and Information Understanding [Electronic Journal at http://www.la-press.com/current-challenge-in-consumer-health-informatics-bridging-the-gap-betw-a1390]." Biomedical Informatics Insights 2009. You need to scroll down to see the abstract, then download the pdf file from the right column. Explores the need to help health information consumers to bridge the gap between access to information and information understanding—i.e. to help consumers understand health related web-based resources so that they can act upon it. Discusses the many issues involved.

Eysenbach, G. and A. R. Jadad (2001). "Evidence-based Patient Choice and Consumer health informatics in the Internet age [Electronic Journal at http://www.jmir.org/2001/2/e19/]." Journal of Medical Internet Research 3(2). The article explores access to and barriers to health information including healthcare providers and proposes that there be a new academic informatics discipline to explore the possibilities that are being created for consumers.

Cyberchondria

This Wikipedia site, last updated June 1, 2009, is very complete and well-balanced. Has links to many excellent resources on the topic.
http://en.wikipedia.org/wiki/Cyberchondria

Markoff, John (2008, November 24). Microsoft Examines Causes of ‘Cyberchondria’ A version of an article that was in the New York Times November 25. Interesting piece that is fairly well balanced.
http://www.nytimes.com/2008/11/25/technology/internet/25symptoms.html?_r=3&partner=rss&emc=rss

Stop Googling Your Symptoms. Posted Tuesday, August 07, 2007 8:15 AM by Noah Oppenheim. An interesting first person account that denigrates Internet searching for symptoms followed by postings from many whose searching proved life saving. Probably a little truth in what Mr. Oppenheim says, but then the evidence from the postings is interesting too. Keep in mind that those moved to post were upset with what he said. Those who agreed, or who had similar experiences may not have been moved to post.
http://allday.msnbc.msn.com/archive/2007/08/07/306496.aspx

Top of the Page

 

e-Health

e-Health Initiative. This site provides information about the Work of the e-Health Initiative's Public-Private Sector Collaboration for Public Health. Excellent links that are kept up to date.
http://www.ehealthinitiative.org/

E-Health: Navigating The Internet For Health Information. Although written in 2002, there is still an excellent white paper about eHealth. A PDF File.
http://www.himss.org/content/files/whitepapers/e-health.pdf

The Engaged E-patient Population (2008, April 29). Pew Internet Report.
http://www.pewinternet.org/Reports/2008/The-Engaged-Epatient-Population.aspx

Journal of Internet Medical Research. A peer-reviewed transdisciplinary journal on health and health care in the Internet age. Excellent articles, JIMR is top ranked as the #6 journal in the health sciences category (out of 57 leading journals) and #2 in the health informatics category (out of 20 journals). (Note that the #1 in this category, JAMIA, has an almost equal Impact Factor of 3.1)
http://www.jmir.org/index (Also listed in the Online Journals list.)

Lee, Thomas H. (2009, May 18). Commodifying Content Through IT: Could Physicians Be Next?
http://www.ihealthbeat.org/Perspectives/2009/The-Great-Commodification-of-Content-Could-Physicians-Be-Next.aspx/?cmp=BAC-VIP&Vendor=HcIT

Health Literacy

OJIN: Online Journal of Issues in Nursing Topis of Health Literacy. Includes several 2009 articles and an overview. (Added February 25, 2010)
http://www.nursingworld.org/MainMenuCategories/ANAMarketplace/ANAPeriodicals/OJIN/JournalTopics/Promoting-Health-Literacy.aspx

Health Literacy in Primary Care. An excellent information source that presents ideas in easily understandable format, includes some questions and videos. (When you see a picture on the screen with the icons for play, stop etc. click on play and see the video.)
http://www.nursing.umich.edu/ocp/modules/healthLit/healthLit.html

Health Literacy - Definition of, list of skills needed.
http://nnlm.gov/outreach/consumer/hlthlit.html

Health Numeracy

Osborne, Helen (2007). "Health numeracy: How do patients handle the concept of quantity when it relates to their health?" Great information on how to avoid this type of patient confusion.
http://www.boston.com/jobs/healthcare/oncall/articles/2007/09/19/health_numeracy/.

Wargo, Eric (2007). Numeracy and Health: Helping Americans Do the Math. A more theoretical, but easily understood discussing the problem and presenting some solutions.
http://www.human.cornell.edu/che/HD/Outreach_extension/upload/Numeracy-Reyna.pdf

Top of the Page

Hospital Quality

Compare Hospital Quality. On this page, you can compare hospitals within a given distance of a zip code on many areas. (Added November 19, 2009)
http://www.medicare.gov/Hospital/Search/Welcome.asp?version=default&browser=Firefox|3|WinXP&language=English&defaultstatus=0&MBPProviderID=&TargetPage=&ComingFromMBP=&CookiesEnabledStatus=&TID=&StateAbbr=&ZIP=&State=&pagelist=Home

This report from the LeapFrog Group detailing the percentage of hospitals that meet minimum criteria for care in various areas will curl your hair.
http://www.leapfroggroup.org/media/file/leapfrogreportfinal.pdf

Results of 2008 LeapFrog Group survey of hospitals. Find you local hospital on this Excel spreadsheet.
http://www.leapfroggroup.org/media/file/Copy_of_RRO_Hospital_Detail_ReadOnly.xls

Installing a technology in a client's home

Role of Nurses in Installing Telehealth Technology in the Home: Discussion.
http://www.medscape.com/viewarticle/508913_5

Medical Home, Patient Centered

A Complimentary Podcast: Medical Home at Oklahoma University. After registering you can download and listen to the 27 minute podcast describing the medicasl home at Oklahoma University.
http://www.bulldogsolutions.net/MedTech/MEDPodcast_IBM_OU/frmRegistration.aspx?bdls=19201

This page from IBM offers links to the Executive Summary of their report on patient centered medical homes, and a chance to download the complete report, after free registration.
http://www-935.ibm.com/services/us/gbs/bus/html/gbs-medical-home.html?open&cm_mmc=5555-_-n-_-vrm_newsletter-_-10165_120052&cmibm_em=dm:0:15635320

Nurse Created Health Web Pages

Bandaids and Blackboards. A Web site for chronic ill children and their parents. Created and maintained by Joan Fleitas. Excellent page!!
http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/

Detecting Vision Problems in Preschoolers. Although not created by a nurse, this site is an excellent example of information that can help a group that could otherwise be missed,
http://lazyeyetest.org/

Patients Bringing Internet Information to Healthcare Provider

Murray E., Lo B, Pollack P.,Donelan K, Catania J, Lee K., Zapert K. &Turner R. (2003). The impact of health information on the Internet on health care and the physician-patient relationship: National U.S. survey among 1.050 U.S. physicians. Journal of Medical Internet Research 5(3). The article is exactly as the title suggests.
http://www.jmir.org/2003/3/e17/

Readability

Columbia University of Nursing. Assessing Suitability of Written Materials.
http://www.nursing.columbia.edu/informatics/HealthLitRes/assessWrittenMat.html

Information on assessing readability using Microsoft Word. Assessing readability.

Support Groups

Wikipedia Discussion of Support Groups.
http://en.wikipedia.org/wiki/Support_group

To find a group, use a search tool and enter "support group _______" but replace the blanks with the name of the condition for which you wish to find a support group.

Top of the Page

Text to Speech Software

Natural Reader. This software comes in three versions: a free version which only used a computer voice, a $40 version with one natural voice, and an enterprise version with many other extras.
http://www.naturalreaders.com/

Read Please. Another text to speech software package. Had a free version with 3 Microsoft voices and a plus version for $60 with many more features.
http://readplease.com/english/readplease.php

Tools to Help the Physically Challenged Use the Web

Alternative Keyboards and Mice. These devices enable people with special needs to enter computer data much more easily and quickly than with conventional keyboards.
http://www.infinitec.org/work/tools/singlehandtyping.htm

Click-N-Type virtual keyboard. An on-screen virtual keyboard designed for anyone with a disability that prevents typing on a physical computer keyboard. As long as the person can control a mouse, trackball or other pointing device, he or she can send keystrokes to virtually any Windows application or DOS application that can run within a window. From the Web site "Oh yes, it's FREE. If you need it, you can have it."
http://www.lakefolks.org/cnt/

Description of many different types of keyboards to make computer use easier for the physically challenged from the Guild of Accessible Web Designers. Use the menu on the right to find information about other tools such as mice, those for low vision users etc.
http://www.gawds.org/show.php?contentid=96

Top of the Page

Web site Creation

A complete online book (you can also purchase this as a book) "Web Style Guide." This book is an offshoot of this web site maintained by the Yale University's Center for Advanced Media Instruction. Well worth a visit or many. Covers all aspects of creating a Web site.
http://www.webstyleguide.com/wsg3/index.html

Using graphics. Need an explanation of antialiasing and transparency? Spend five minutes at this site. It also has a great glossary of the terms used in web graphics.
http://www.lunaloca.com/tutorials/antialiasing/

Optimizing web graphics. This site contains an online tool to reduce the size of both gif and jpeg files and information on the use of color in web pages. Is a link from the PC Webopedia site, a must visit if you care about the user's time.
http://www.webreference.com/dev/graphics/

Tizag tutorials. A complete set of online tutorials from beginner to web host guide including information on creating cascading style sheets. Provides interactivity in learning by allowing learner to type into the tutorial and see results. Well thought out and helpful site.
http://www.tizag.com/

 

What Has Been Learned about Using the Web to Provide Health Care

10 Years of Consumer Health Informatics: What Have We Learned about How to Design Successful Web-based  Interventions? This paper reports results of a systematic review of peer-reviewed,  randomized controlled trials testing the efficacy of web-based health  interventions published from 1996-2006. You may need to use Ctrl+ (that is hold down the Ctrl key and tap the plus key) to read this, because the print is very small. Worth while if considering using the Web to provide healthcare support or information.
http://www.allacademic.com//meta/p_mla_apa_research_citation/1/9/5/1/8/pages195183/p195183-1.php

 

Top of the Page

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Websites Referred to in Text of Chapter

Leapfrog Group. http://www.leapfroggroup.org/cp

Health Canada site. http://www.hc-sc.gc.ca/index_e.html

Australian government health site. http://www.healthinsite.gov.au/

New Zealand government health site. http://www.nzhis.govt.nz/

National Library of Medicine http://www.nlm.nih.gov/

Medline Plus. http://www.nlm.nih.gov/medlineplus/

Pub Med Home. http://www.ncbi.nlm.nih.gov/sites/entrez

United Kingdom, NHS Direct. http://www.nhsdirect.nhs.uk/

http://www.cancer.com

http://www.cancer.gov

http://www.cancer.org

Grief Net Support. http://www.griefnet.org/

CaringBridge. http://www.caringbridge.org/

RelayHealth. https://www.relayhealth.com/

 

Top of the Page

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

References in this Chapter that are Online

American Society of Anesthesiologists Task Force on Preoperative Fasting. (1999). Practice Guidelines for Preoperative Fasting and the Use of Pharmocologic Agents to Reduce the Risk of Pulmonary Aspiration: Application to Healthy Patients Undergoing Elective Procedures [Electronic Version at http://www.asahq.org/publicationsAndServices/NPO.pdf]. Anesthesiology, 90, 896-905.

AMIA Consumer Health Informatics Working Group. (2007, July 12). Mission Statement.  Retrieved November 19, 2008, from http://www.amia.org/mbrcenter/wg/chi/

Brady, M., Kinn, S., & Stuart, P. (2003, August 15). Cochrane Summar: Preoperative fasting for adults to prevent perioperative complications. Retrieved November 19, 2008, from http://www.cochrane.org/reviews/en/ab004423.html

Brailer, D. J. (2004, July 21). The decade of health information technology: Delivering consumer-centric and information-rich health care. Retrieved November 19, 2008, from http://www.ihi.org/IHI/Topics/Improvement/ImprovementMethods/
Literature/DecadeofHealthInformationTechnology.htm

Center for Personal Assistance Service. (2005). US Disability Data Table From the 2005 American Community Survey. Retrieved November 19, 2008, from http://pascenter.org/state_based_stats/state_statistics_2005.php?state=us

Centers for Medicare and Medicaid Services. (2007, Octber 26). Summary of Responses to an Industry RFI Regarding a Role for CMS with Personal Health Records. Retrieved http://www.cms.hhs.gov/PerHealthRecords/Downloads/SummaryofPersonalHealthRecord.pdf, 2008, from http://www.cms.hhs.gov/PerHealthRecords/Downloads/
SummaryofPersonalHealthRecord.pdf

Eysenbach, G. (2000). Recent advances: Consumer health informatics [Electronic Version at http://www.bmj.com/cgi/reprint/320/7251/1713]. British Medical Journal, 320(7251), 1713-1716.

Eysenbach, G., & Kohler, C. (2002). How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews [Electronic version at http://www.bmj.com/cgi/content/full/324/7337/573]. British Medical Journal, 324(7337), 573-577.

Harris Interactive. (2002, June 11). 4-Country survey finds most cyberchondriacs believe online healthcare information is trustworthy, easy to find and understand. Retrieved November 20, 2008, from http://www.harrisinteractive.com/news/newsletters/healthnews/
HI_HealthCareNews2002Vol2_Iss12.pdf

Harris Interactive. (2007, July 31). Harris Poll Shows Number of "Cyberchondriacs" – Adults Who Have Ever Gone Online for Health Information– Increases to an Estimated 160 Million Nationwide. Retrieved November 20, 2008, from http://www.harrisinteractive.com/harris_poll/index.asp?PID=792

Leapfrog Group. (2007). How & Why Leapfrog Started. Retrieved November 19, 2008, from http://www.leapfroggroup.org/about_us/how_and_why

Leapfrog Group. (2007). Leapfrog Hospital Ratings. Retrieved November 20, 2008, from http://www.leapfroggroup.org/cp

Marconi, J. E-Health: Navigating The Internet For Health Information (Advocacy White Paper). Retrieved September 19, 2007, from http://www.himss.org/content/files/whitepapers/e-health.pdf.

Montalvo, I. (2007). , (September 30, 2007) "The National Database of Nursing Quality IndicatorsTM (NDNQI®). OJIN: The Online Journal of Issues in Nursing, 12(3), Available at http://www.nursingworld.org/MainMenuCategories/
ANAMarketplace/ANAPeriodicals/OJIN/TableofContents/
Volume122007/No3Sept07/ NursingQualityIndicators.aspx

NCQA Organization. (2007). About NCQA. Retrieved November 20, 2008, from http://web.ncqa.org/tabid/65/Default.aspx

Pandolfini, C., & Bonati, M. (2002). Follow up of quality of public oriented health information on the world wide web: systematic re-evaluation [Electronic version at http://www.bmj.com/cgi/content/full/324/7337/582]. BMJ, 324(7337), 582-583.

Raimie, L., & Horrigan, J. (2005). (Pew Report) Internet: The Mainline Streaming of Online Life Retrieved November 20, 2008, from http://www.pewinternet.org/pdfs/Internet_Status_2005.pdf

RCN Guideline for the multidisciplinary team. (2005, November). Perioperative fasting in adults and children. Retrieved November 20, 2008, from http://www.rcn.org.uk/publications/pdf/guidelines/
PerioperativeFastingAdultsandChildren-002779.pdf

Services, U. S. D. H. a. H. (2007, July 27). Hospital Compare. Retrieved November 20, 2008, from http://www.hospitalcompare.hhs.gov/

Sullivan, E., & Glassman, P. (2007, July 17). Health Literacy. Retrieved November 20, 2008, from http://nnlm.gov/outreach/consumer/hlthlit.html

Toronto, E. Epilespy Fact Sheets Photosensitive Epilepsy. Retrieved November 20, 2008, from http://www.epilepsytoronto.org/photo.html

What is CHESS? (2006). Retrieved November 20, 2008, from https://chess.wisc.edu/chess/projects/about_chess.aspx

Word Spy. (2000, June 9). Cyberchondriac.Retrieved November 20, 2008, from http://www.wordspy.com/2000/06/cyberchondriac.html

Created June 6, 2009

Top of the Page